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NOW is the time... Learn More about Usher Syndrome in Louisiana

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NOW is the time... Learn More about Usher Syndrome in Louisiana
NOW is the time...
to do something about
Usher Syndrome
Learn More about Usher Syndrome in Louisiana
Pennington Biomedical Research Center, Baton Rouge
October 25, 2014, 10 a.m. to 2 p.m.
Usher Syndrome is the leading genetic cause
of deaf-blindness and affects a disproportionate
number of people in Louisiana. It’s time to bring
the Louisiana community of patients, families
and professionals together to do something!
What does it mean to have Usher Syndrome today?
Jennifer Lentz, PhD, LSU Health Sciences Center
Why is it important to have Genetic Testing?
Karmen Trzupek, MS, CGC, Informed DNA
How do you manage Hearing Loss with Usher?
Anita Jeyakumar, MD, MS, FACS, Children’s Hospital New Orleans
What is being done for the Loss of Vision?
Maria Reinoso, MD, LSU Eye Center
What does the future hold?
Ask the parents, patients and doctors
To register for this symposium, or for more information, contact
Susie at [email protected] or call 877-926-0859.
Symposium presented by:
Eye on Jacob
SIGHT
•
SOUND
•
SPIRIT
Funding Research f or Usher Syndrome
Fly UP